Recent Publications

Development and evaluation of a healthcare decision-making intervention for African American parent-adult daughter dementia dyads: a mixed-methods study protocol

Bonds Johnson, K., Lyons, K. S., Epps, F., Daniel, G., Monin, J. K., Powell, W. & Hepburn, K. (2025). BMJ Open

This article focuses on how Dr. Bonds Johnson’s research study will be conducted with African American parents living with dementia and their adult daughters. The goal of this study is to develop a culturally responsive intervention to help African American adult daughters with making health care decisions with and for their parents living with dementia.

Tele-Savvy outcomes of non-Hispanic Black American and White caregivers

Bonds Johnson, K., Higgins, M., Epps, F., Brewster, G. S., Alexander, K., & Hepburn, K. (2023). The Gerontologist, gnad044. Advance online publication.

This article focuses on how Black American and White caregivers’ caregiver mastery and psychological health were influenced after participating in the Tele-Savvy program.

Barriers to pain management: Incongruence in Black cancer

Bonds Johnson, K., Bai, J., Waldrop, D., Paul, S., Lee, H., Lyons, K. S., Yeager, K. A. (2022).  Barriers to pain management: Incongruence in Black cancer caregiving dyads. Journal of Pain and Symptom Management. 63(5), 711-722.

— This article highlights Black care partners play an important role in cancer caregiving dyads regarding barriers to pain management and potential side effects.

Promoting caregiver mastery in Black American dementia caregivers.

Bonds Johnson, K., Brewster, G. S., Cicero, E., Hepburn, K., Clevenger, C. K., Daniel, G., Pak, V., Paul, S., & Epps, F. (2022). The Gerontologist, 62(5), 685–693.

— This article outlines how theory offers ways for Black American dementia caregivers to achieve a sense of caregiver mastery within the environments where caregiving occurs.

Using poetry as data to explore daily and formal care decision making within African American dementia dyads.

Bonds Johnson, K., Epps, F., Song, M., Lyons, K. S., Driessnack, M. (2021). Geriatric Nursing. 42(4): 919-925.

— This article identified African American persons living with Alzheimer’s disease and related dementias were involved in both daily and formal care (e.g., health care) decision making, but the type of involvement and degree of acceptance varied across the sample.